Health & Fitness This is what living with chronic fatigue syndrome is actually like

18:23  01 february  2018
18:23  01 february  2018 Source:   netdoctor.co.uk

7 caffeine-free fixes to ease winter tiredness

  7 caffeine-free fixes to ease winter tiredness Feel refreshed

Chronic Fatigue Syndrome (officially known as myalgic encephalomyelitis, or ME) is a bit of a mystery within the world of medicine. To find out what life with Chronic Fatigue is like , we spoke to 29-year-old Anna Hogan in association with the ME Association.

Envision that your life is nothing but constant headaches, illness,and a never-ending barrage of flu- like symptoms. What if you couldn't move from the. CFS , or Chronic Fatigue Syndrome , can affect your mind as well as your body.

This is what living with chronic fatigue syndrome is actually like © Junru Bian / EyeEm / Getty This is what living with chronic fatigue syndrome is actually like

Chronic Fatigue Syndrome (officially known as myalgic encephalomyelitis, or ME) is a bit of a mystery within the world of medicine. It is believed to affect around 250,000 people in the UK yet, despite its debilitating symptoms, it remains shrouded in stigma and lacking in funding.

However, recent breakthroughs in research – most notably the landmark trial of intensive online therapy, found to successfully treat two-thirds of teenagers suffering with the condition – saw ME hitting headlines at the end of last year.

The reason you struggle to get up in the morning might have nothing to do with being tired

  The reason you struggle to get up in the morning might have nothing to do with being tired If you've got a closer relationship with the snooze button than your own partner, this could be why.Sure, your bed is nice and warm and cosy and all that, but it shouldn't be this hard to force yourself to get up.

Cold, medical language does little to paint a picture of what it's like to live with ME. MORE:me cfs mecfs myalgic encephalomyelitis Chronic Fatigue Syndrome chronic fatigue .

122 responses to “ Living with Chronic Fatigue Syndrome – a survival strategy”. I have never tried acupuncture, but I am actually pretty sure that my CFS began as a direct result of a viral infection. I like that you have managed to live with your CFS . But it is hard to never function normally again.

To find out what life with Chronic Fatigue is like, we spoke to 29-year-old Anna Hogan in association with the ME Association.

Anna's story

"I was diagnosed with CFS at age 20 just after being sacked from my first full time job because: 'Sick people are unreliable'. The extreme fatigue meant that I was too unwell to go to university at the same time as my peers, and when I told a friend this they replied with 'Well, that's not a real thing, Anna, is it?'. From that moment on I never spoke about it unless I had to, as people's reactions can be quite difficult to take.

"I worked hard on recovering (because doctors tell you that you will recover), slowly upping my activity levels. I did everything doctors and therapists told me to do, including the lightening process – a three-day personal training programme – among other things. At 26 I got into university and for the first four months I thought I was doing great, I was going to make a full recovery and get back to living life like everyone else my age."

Her Chronic Pain Was a Medical Mystery. Was It an Unexplained Condition?

  Her Chronic Pain Was a Medical Mystery. Was It an Unexplained Condition? Leslie Levine’s pain felt ‘like my legs were being dipped in boiling oil 24/7.’ A neurologist’s creative solution helped.The emergency room and a series of doctors could do little but scratch their heads and offer her painkillers.

What It's Really Like To Live With Chronic Fatigue Syndrome . Suddenly I realized, Oh, actually a lot of people with this condition have those experiences, and our bodies actually function and don’t What Omar has always done is to frame that as, like : No, this is just another adventure in our lives .

We’re Clever Girls. Living with Chronic Fatigue Syndrome : Managing Expectations. Cooking is something I actually enjoy when I’m feeling okay because I like the end result. I like a good meal.

person sitting on a table © Provided by National magazine company ltd (Hearst UK)

Debilitating symptoms

Those suffering from ME can experience a range of symptoms, the most common being a severe fatigue and malaise following mental or physical activity, the full extent of which only tends to becomes apparent between 24 to 48 hours after the activity. Other symptoms include muscular pain, joint pain or severe headaches, poor short-term memory and concentration, stomach pain and other problems similar to irritable bowel syndrome, sleeping problems and a sensitivity or intolerance to light, loud noise, alcohol and certain foods. It is also not uncommon for those with CFS to develop mental health issues, such as depression, anxiety and mood swings.

"Reality struck when I realised I was 'crashing' a lot. My symptoms gradually got worse and worse and I tended to relapse at the end of each academic year, meaning that while everyone else went on holiday, I had to rest.

Loneliness In Britain Has Escalated From Personal Misfortune Into A Social Epidemic

  Loneliness In Britain Has Escalated From Personal Misfortune Into A Social Epidemic Imagine Britain in the grip of a chronic illness that was causing widespread misery, costing the country millions in lost days at work, and doing more harm to those affected than smoking fifteen cigarettes a day or being obese. Imagine Britain in the grip of a chronic illness that was causing widespread misery, costing the country millions in lost days at work, and doing more harm to those affected than smoking fifteen cigarettes a day or being obese. There would be calls for immediate action.

What it's really like to suffer from chronic fatigue syndrome . At 26 I got into university and for the first four months I thought I was doing great, I was going to make a full recovery and get back to living life like everyone else my age."

Myalgic encephalomyelitis (ME) is sometimes called chronic fatigue syndrome ( CFS ), which is confusing because CFS was already associated with post-viral fatigue This Is What Living With Crohn's Disease Is Actually Like . We Spoke to Some NHS Workers About How They're Feeling Today.

"In my second year I privately tried to ask a tutor for help with a deadline as I felt I was falling behind due to my health, but did not receive any assistance. In my third year I was so excruciatingly fatigued that I cried every day out of pure frustration. I made an appointment with a GP out of desperation who told me that if I did breathing exercises I would be much better, but when I informed him that I already did breathing exercises I was told that I was doing the 'wrong ones'. I've met many a GP who will dismiss it as basically nothing or, worse, tell me I have health anxiety or hypochondria.

"I am now 29 and three months into the worst relapse I have ever experienced following the completion of my degree, and am not well enough to start a masters degree or work. It's difficult for me to go anywhere alone as the dizziness and general cognitive dysfunction can get a little bit frightening. I can't drive now, I wear sunglasses indoors and earplugs in the supermarket."

  This is what living with chronic fatigue syndrome is actually like © Provided by National magazine company ltd (Hearst UK)

A positive note

"Despite all this, I finished my degree on time with a first. If nothing else, this syndrome has made me so much more driven to achieve something meaningful so that I can metaphorically stick my fingers up to the people who thought I feigned illness for attention and who think it's just laziness.

Is it possible for men to be allergic to sex?

  Is it possible for men to be allergic to sex? Apparently so

You see, for me, as is the case for most people with CFS , chronic fatigue syndrome arrived in the form of what I thought was a simple stomach flu. 1. Living with CFS is not all bad. Like any respectable MIL-DIL relationship, life with chronic fatigue has its ups and downs.

So this is the second installment on chronic illness (Read part one here) – specifically around Chronic Fatigue Syndrome . I recommend reading The Spoon Theory [TINO Crew note: This is really worth a read – we loved this way of explaining what is is like to live with a chronic illness] as this is good

"I have been forced to reevaluate my life goals, accept my physical limitations and that I will likely never be able to keep up with my able bodied friends but, weirdly, I am feeling the most positive I have felt in ten years. Long may this lack of depression reign!"

Things you should never say to a person with ME

We spoke to Anna about some of her most-hated but often-heard phrases about CFS.

"But you look so well!"

Those suffering from chronic fatigue often look 'fine', but that does not mean they are feeling it.

"Get well soon."

The term 'chronic', used alongside illness, insinuates a condition that is persistent or constantly recurring. Many people who suffer from CFS will have it for life.

"This will definitely work."

"I did cognitive behavioural therapy (CBT) for over a year after doctors lead me to believe they would, at the very least, make a huge difference. When I realised that they had made no difference to me whatsoever it was the most gutted I had ever felt about anything." People are different and respond differently to treatments.

"Have you tried giving up sugar?"

"If one more person asks me this, there will be trouble!"If you think you might be suffering from CFS or ME, know someone else who might be or simply want more information, visit www.meassociation.org.uk.

8 concerning things that happen to your body if you’re constantly dehydrated

  8 concerning things that happen to your body if you’re constantly dehydrated We all know that it’s vitally important to drink eight (approximately — all bodies are different) glasses of water a day and doing…This loss of fluid can happen rapidly, like when you sweat while exercising, or it can happen gradually when you don’t take in enough water over a long period of time. Chronic dehydration sets in when your body is constantly lacking necessary fluids. Your body will actually become used to this dehydrated state, as Rodale Wellness claims, and you’ll lose sensitivity to water deprivation, and therefore you won’t feel as thirsty even though your body needs more water.

Should your levels be low or imbalanced, you may be required to start a hormone therapy 16 Nov 2009 I am also trying to convey how serious CFS can be as there is a misconception in the community about what Chronic Fatigue Syndrome actually is.

Although the cause of chronic fatigue syndrome is still unknown, doctors can diagnose it by ruling out other possible causes of fatigue . "People would constantly ask what was wrong with me, and I felt like I was going crazy.

Related: Signs You May Have Chronic Fatigue Syndrome (provided by Buzz60)

What to watch next
  • a person taking a selfie: Now You Can Experience 'The Notebook' for Yourself

    Now you can experience 'The Notebook' for yourself

    Buzz60 Logo
    Buzz60
    1:10
  • a stack of flyers on a table: Legal Weed Coincides with 15% Lower Alcohol Sales in States, Study Finds

    Legal Weed Coincides with 15% Lower Alcohol Sales in States, Study Finds

    Buzz60 Logo
    Buzz60
    1:11
  • The grisly reason you can't use the bathroom during takeoff

    The grisly reason you can't use the bathroom during takeoff

    Buzz60 Logo
    Buzz60
    1:13
  • a person standing in front of a store: Macaulay Culkin Prefers First 'Home Alone' Movie Because '100% Less Trump'

    Macaulay Culkin Prefers First 'Home Alone' Movie Because '100% Less Trump'

    Buzz60 Logo
    Buzz60
    0:46
  • Cross from One of U.K.'s Earliest Christian Burials Making Public Debut

    Cross from one of U.K.'s earliest Christian burials making public debut

    Buzz60 Logo
    Buzz60
    1:23
  • What Topic Makes Women More Uncomfortable than Talking about their Weight?

    What Topic Makes Women More Uncomfortable than Talking about their Weight?

    Buzz60 Logo
    Buzz60
    1:05
  • Almost Half of Americans Have Already Given Up Fitness Resolutions

    Almost Half of Americans Have Already Given Up Fitness Resolutions

    Buzz60 Logo
    Buzz60
    0:57
  • a hand holding a cellphone: Two Canadian Cops Get Stoned on Duty... And then Call for Backup

    Two Canadian Cops Get Stoned on Duty... And then Call for Backup

    Buzz60 Logo
    Buzz60
    0:49
  • a man and a woman taking a selfie: Meghan Markle Channeled Willy Wonka Before Getting Real Golden Ticket

    Meghan Markle Channeled Willy Wonka Before Getting Real Golden Ticket

    Buzz60 Logo
    Buzz60
    0:54
  • a woman sitting on a bench: Oscar Winning Director Loves His Iphone so Much He Wants to Make All His Films With It

    Oscar Winning Director Loves His Iphone so Much He Wants to Make All His Films With It

    Buzz60 Logo
    Buzz60
    0:52
  • a cat sitting on a table: Job In Ireland Caused Over 3000 International Cat Lovers To Apply

    Job in Ireland caused over 3000 international cat lovers to apply

    Buzz60 Logo
    Buzz60
    0:49
  • Guess How Much Owning A Pet Costs Annually?

    Guess How Much Owning A Pet Costs Annually?

    Buzz60 Logo
    Buzz60
    0:59
  • a dog looking at the camera: This Is How Much Owning A Pet Costs Annually

    How much your pet costs each year might surprise you

    Buzz60 Logo
    Buzz60
    0:59
  • person in a suit and tie: Woman Has Hilarious Reaction to Seeing Beyonce and Jay-Z

    Woman has hilarious reaction to seeing Beyonce and Jay-Z

    Buzz60 Logo
    Buzz60
    0:51
  • a hand holding a cup: A California Lawmaker Wants to Ban Straws Unless Requested

    A California Lawmaker Wants to Ban Straws Unless Requested

    Buzz60 Logo
    Buzz60
    1:08
  • a person standing posing for the camera: You'll Never Guess Who Will Get Michelle Obama's First Sit Down Interview Since Leaving The White House

    You'll Never Guess Who Will Get Michelle Obama's First Sit Down Interview Since Leaving The White House

    Buzz60 Logo
    Buzz60
    0:43
UP NEXT
UP NEXT

For more of the most popular News, Sport, Lifestyle & Entertainment on MSN, Follow us on Facebook, and on Twitter

Lena Dunham, 31, reveals she's had a full hysterectomy due to endometriosis struggle .
Lena Dunham has revealed she underwent a full hysterectomy at the age of 31. The Girls star has spoken openly about her endometriosis, and wrote about the experience for VogueThe 31-year-old, who has spoken openly about her health struggles in the past, opened up about her decision in an essay written for the March issue of Vogue.

—   Share news in the SOC. Networks

Topical videos:

This is interesting!