Ireland Mum battling for medicinal cannabis leads tributes to daughter, 17, who passed away

11:25  13 february  2018
11:25  13 february  2018 Source:   Extra.ie

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Tina McElligott passes away age 17 after battling Alpers disease © Extra.ie Tina McElligott passes away age 17 after battling Alpers disease

A Kerry teenager died in the arms of her heartbroken parents at the weekend after a battle with a rare illness.

Mags McElligott announced with ‘a heavy heart’ that her ‘beautiful princess’ Tina McElligott, aged 17, has passed away.

‘Tina, you will be in the sun, the wind and the rain. You will be in the air we breath with every breath we take,’ she wrote.

Tina McElligott passes away age 17 after battling Alpers disease © Extra.ie Tina McElligott passes away age 17 after battling Alpers disease

Tina McElligott passes away age 17 after battling Alpers disease. Pic: Facebook

She continued: ‘Tina, you will sing songs of hope and cheer, for you beautiful child, there is no more pain and no more fear.

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‘Tina, you will be in the clouds above, I know we will hear you whisper words of love.

‘Before long we will meet again, until then we will listen for your song. Fly high little one.

You will be forever and ever in our hearts.’

Tina suffered from a rare progressive condition and sought medicinal cannabis outside of Ireland. Pic: Facebook

The teenager had suffered from Alpers disease, a progressive condition which leads to seizures, liver disease and dementia.

The rare illness that causes dozens of seizures daily prompted Tina to go to Spain last year to seek medicinal cannabis.

Tina’s parents Mags and Martin previously criticised the Government for stalling the introduction of medicinal cannabis which they claim could give sufferers of various illnesses a better quality of life.

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Unfortunately, the patient passed away a few weeks later, and according to the study cause of death was determined to Robert, were you able to try out the cannabis oil treatment for your daughter with neuroblastoma? i am Tara’s mum . Just to update that she is now two years seizure free.

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Tina was the only Irish person living with Alpers disease, and the world’s longest living person with the rare disorder. Her cousin Sarah Crowe, 13, who also suffered from Alpers, died in 2016.

The disease is a progressive neurological disorder that starts in childhood and is often complicated by serious liver disease.

The life expectancy of those with the disease is from three months to 12 years after onset.

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